Monday, June 18, 2012

Little Miss Morgan.

I often say 'I'm blessed' when I refer to the fact that I get to do what I love as my career.  But one of my biggest blessings in photography actually came in the form of a little girl I met late last year.  Little Miss Morgan.

Morgan's Mom reached out at holiday time with what you would think was a simple request- she wanted one image with her daughter's eyes open.  Now I get many requests- mostly for real smiles, but eyes open?  I quickly learned that Morgan is on a lot of medication for Dravet Syndrome.  She is very sleepy and it's hard for her to keep her eyes open, especially after the meds are administered.

When you look up what Dravet Syndrome is, it's enough to make you break down and cry.  I never even heard of this rare gene mutation until I met Morgan.  Dravet Syndrome is a rare and catastrophic form of intractable epilepsy that begins in infancy.  Morgan faces a lot of seizures brought on by many things and her immune system is severely compromised (you can read more about it on the foundation site HERE).  She has her challenges, but Morgan's parents have surrounded her in a blanket of love.  Her mother truly is my hero.  It is my sheer pleasure to film her and her family and though they are making a big move soon, I promised them I would travel to wherever Morgan is to continue to film her.  They are stuck with me :).

This Summer I will be hosting a morning of super minis for super Morgan.  I will be donating all profits made through the minis to her family to help with their expenses.  Hospital trips unfortunately are frequent.  So I urge you if you are interested in hearing more about the super minis, and becoming involved with the cause, please email my photo assistant Amy to be placed on Morgan's list.  You can reach Amy at amy@jellybeanpics.com and please put 'Morgan' as your subject line.  We just need your email to know you want to help.  Here's Curly Q. herself...peaceful in Mommy's arm.




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