Tuesday, February 11, 2014

the fighter.



I've told Morgan's story on this blog many times.

Having had the distinct honor of being her photographer for three years,

I shout out her story out to the masses whenever I can.

All in hopes to help raise awareness of this awful disease called Dravet Syndrome.

Dravet Syndrome is a severe form of child epilepsy.

And currently there is no known cure.

At three years old, Morgan continues to fight her fight every day of her life.

Constant seizures are just one of her near daily struggles.

Due to extremely low muscle tone, she cannot sit or stand up unassisted.

Her Mom Kate, and Dad Curtis,  are her rocks.

Literally.

Her Mom and I were so pleased with this session, because it showed more sides of Morgan

than I think we both could ever have hoped for...

She is a brilliant bright light in this world.

After you look at this beautiful girl, please send her and her family strength through a quick prayer.

And hopefully you will gain a little perspective on what a true fighter really is....















3 comments:

Heather Rodriguez said...

Be still my heart! has there ever been a more beautiful story <3 Miss Morgan you and your parents are in my daily prayers, Jenn thank you for being such a powerful voice.

Yehudis Goldfarb said...

Wow- what a powerful set of images. U can feel the beautiful bond between mom and morgan!!

Life with Kaishon said...

What a beautiful girl. I am so grateful you have been able to capture her childhood so perfectly. She truly has a million dollar smile : ). Thanks for sharing her story. You shine your light and so many see. A blessing indeed.

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